Something about the way you Smile, i may never know the Reason why...
I am in the process of
doing my undergraduate research project with autistic children. Being an expressive person myself , i’m quite
intrigued by the interplay of emotions. So when i was reading about autism and
their ‘deficit’ of emotional understanding and attachment, it was hard to
digest which is why i began my journey to explore and experiment...
Nevertheless, i shall
rant less about my research and more about my new found love. Yes, I have been swept
off my feet by one of such priceless ‘gem’ that I discovered during my exploration.
Her name is Muskaan which literally translates
to a smile.
Muskaan is a 13 year
old (extremely pretty) autistic and non verbal child. This means that apart
from autistic symptoms, she has not spoken a word or a syllable or a sound since
her birth. Quite evidently, being a non verbal child, I could not proceed with
my ‘research design’ with her, since my activity involved at least basic communication verbal with the child. Moreover, Muskaan has also had frequent epileptic fits since
the age of 2 years. She is EXTREMELY thin, with no basic human instinct to eat and
drink (so practically food has to be forced into her). She also suffers from gravitational
insecurity (especially an avoidance towards stairs, though she is comfortable
in an elevator.)
The only time that I spent with her was 2 hours (1 hour on each day) during her session of Auditory Integration Therapy. I am told that she has made marked improvements. There was
a time when Muskaan would just refuse to hear any sound or music and
immediately locate it’s source to unplug it. She also has this obsession of
holding pins (board pins or staple pins) in her hand, but she is not at all
self injurious. She also has this constant habit of peeling... (wood paint or
scratching anything that is scratch-able).
Even though I spent
only 2 hours with her, her presence in my life has been bliss. That one hour
with her seemed like ages of communication making time- elastic and filtering
moments. The first time I met her, she did not seem scared of me at all (otherwise
very atypical of her behaviour). The second
time I met her, was after a gap of 20 days. She entered the room, came towards
me and held my sweater from the waist. Was she hugging me? :O *dazed* I would definitely
like to assume YES! And this was one of those moments i felt i was in a trance
and unable to react. She spent some time looking around in the room, locating
the pin and holding it in her hand. The speech therapist and i had to
forcefully make her sit down to make her listen to musical rhymes on the
computer as part of her routine.
Muskaan generally has
an expressionless face, with only occasional slight smiles. Her smiles are to
die for... i used to literally dance whenever i would see her smile or meet her eye
(as she rarely makes an eye contact). The moment of absolute bliss was when she
would turn towards me, in hope that i would help her ‘escape’, by holding my
hand on the last day. She held my hand soo tightly that she just wouldn’t leave
me even after her session was over and she was supposed to go to the first
floor in the elevator.! :O What is all this if this is not COMMUNICATION of
emotions?
I am told that Muskaan
is only close to her mother. She has an elder sister and father with whom there
is not much of interaction. Sad...aint’t it? If Muskaan was my biological
sister , i would dedicate my life to her, pamper her, LOVE her! =( [ i still
would though... i’m never ever going to forget her!] she has taught me the
meaning of ‘relationship’. Muskaan loves
to wander when left to herself... imagine.. she is so FREE! Can normal humans
ever match this level of detachment and yet unconditional love? Can you imagine
undergoing intense physical or emotional pain and not complaining about it? us, so called normal human beings just know how to crib and whine about little worries. Can
you imagine talking incessantly to a person, without ever being conscious of
being JUDGED in return? I spent some beautiful moments talking with Muskaan that i’ve
never felt soo comfortable talking to anyone else! Muskaan teaches us the
power of non verbal communication. She is not Abnormal.. she is Above-normal!
=) We have so much to learn from these autistic children...that i'm overwhelmed with my every encounter with each one of them. they're far more interesting than us! =)
And all that I'm left
with my encounter with Muskaan in the beginning of this journey of the ‘kind’of
people i would like to interact and share my life with, are the words of wisdom
by my Sir, that it doesn’t matter what kind of therapy you are practicing... because
“EVERYBODY RESPONDS TO LOVE”...
I love Muskaan...
वो धीमी सी मुस्कान ,
वो प्यारा सा चेहरा
भर के आकांक्षाएं हज़ार ...
वो छोटी सी पल्कें
वो होटों की सरसराहट ,
वो मोती आसूं का
रह गया मेरे पास ...
वो गुनगुनाती ख़ामोशी
वो सपने देखने की चाह
वो मद्धम हो रही ज़िन्दगी की आहट
क्यों नहीं सुन पाया मैं आवाज़ ?!
वो मासूम सी आँखें
वो धीमी सी मुस्कान ...
Don’t be so caught up
in words... you’re lucky to be able to speak... so keep EXPRESSING... in any
medium that you’re comfortable in! =)
Blessed be
